Sunday, 29 April 2018

Hostile or Supportive - where is Compassion?

I am sharing a gentle picture of flowers but my post is a mix of great concern and some chinks of light to say Women's Voices ARE being heard. I am sorry to my readers and followers if there has been a few weeks gap in my posting... I am shocked to see that it is nearly a month since I was discharged home with what has been defined by my GP as right bronchial pneumonia... there is also still some concern on my cardio vascular system and further tests have been ordered... So this last month has been a blur of me trying to heal and rebuild my stamina. I have been on Operation Build Up and get out of Invalid mode!
I have had hassle from the DWP about the work capability assessment form but my GP as written a letter to say I am in no fit state to attend any assessment at this moment of time. 
it really is appalling that folk that are ill are being hassled to find work... and indeed they could perhaps find work if they were allowed to heal and be supported through that healing journey. But the present system is based on harassment and the idea that all are something for nothing scroungers on benefits.  This really does need major reform as the policies are counterproductive when they actually make folk ill with poverty or prevent healing with good support!

I have been eating well with the help of my daughters filling the freezer with food and an activist friend that got me those Wiltshire farm meals... so each day been having 3 good meals a day and my Ensure supplements and the vitamins the doctors ordered.  You know how I had been having crumbling teeth and spontaneous dental fractures... I can now actually feel the strength in my teeth again as calcium and vit D builds again in my system.

Do you remember the neighbour complaining about my garden if you look back in my post you will see the saga? Well in the nice sunny days we had recently I kept doing some target spot weeding and putting in some summer bulbs my daughter had got on wowcher offer site.   I did this not for the complainant but for me to help me with will power to get out of the invalid mode. I had to keep resting as i would have fits of coughing, wheezing, shortness of breath and heart pounding... so had to be measured slow effort.. but it felt good to get my hands in the earth.  I also managed to get some NYR remedies with the help of my activist friends. So was having daily healing showers with flower remedies to help me heal..
BUT, our "Victor Meldrew!" type nextdoor was not seeing all the effort I was putting in not one offer of a cup of tea no no no but came out to challenge me about a young sapling sycamore tree as natural propagation from birds dropping seeds. He has an amazing way of puffing himself up in an animalistic way to challenge you and said "What you doing about this tree it will take light from my garden! "  I told him to back off with his complaints as I had just come out of hospital.. "what complaints he said I have not complained!"..  he whittered on and on and I asked his wife to tell him to stop I had just come out of hospital. I did shout that it is time he learned wisdom in his old age and be kindly neighbour not malicious.

I rang the police as readers I am fed up of being bullied... the officer that came was amazing and so kindly he saw all my campaigning and said we need to team up with you Marjorie as this is necessary.. He saw how women survivors become alone in the community and are at the mercy of neighbours being kind or simply leaving you alone to get on with your life or bully types! We formulated a plan between us to deal with this issue.

My daughter and son in law came and the neighbours where out at the time they helped to finish off the garden tidying and left. the neighbours returned and I was called - "You F***ing Sh*t face Bitch!" wow neighbours that have reached their old age not learning care and compassion for a fellow neighbour just out of hospital... Unbelievable and so utterly sad that society is like this... I did not react just said it is in the hands of the authority now no comment.  I felt strong in the care and concern the police officer had shown me.

But then Monday of this week my daughter came after work to measure up for a higher fence to help me have some privacy and they started on her... I shouted as I was shocked that he reached over the fence and grabbed my daughters arm.. my daughter has had numerous renal surgery over the last year and her arm has had numerous cannulations and venepunctures and he should not touch her anyway... My daughter told me to not shout... and the neighbour said "yes it must be horrible having THAT as a mother!!!"

No respect for me as a fellow neighbour, no respect for me as retired BSc RN RM no respect for me as Marjorie. 

Such bullying by neighbours is NOT acceptable... and I rang the police... he could have been arrested but due to his age we have a plan and it will involve the community team and council...

I have been hidden away in the house feeling so dam hurt that my life has come to this - vulnerable in my old age instead of strong to get a place that is truly mine as sacred space that I can live my remaining months years in with financial dignity and respect and be able to travel abroad to places where I feel at one with all around me. I am exhausted with my recent illness and my situation. 
But in this time I have found some support in fellow survivors who have come to me and checked on me.  I have also had lots of love and sharing from my Syrian refugees online... to help me see I am loved and respected by them.  In this there have been the local council electioneering and I have had my campaign recognised by both local Labour & tory candidates... we have to get a cross party model of care in the borough for women survivors.. and we need to heal the community as there is so much hate and bullying rather than compassion for one another and communities coming together... Society needs healing from all the austerity, poverty, failed ill thought out DWP policies and brexit damage that has been done.. 

A society without compassion ceases to be a society for it is compassion that holds it together.
Turning pain into Campaign!

Reform to help women heal and rebuild.... when will we get this right and fair for women? Sign the petition it is still on the go till I get some debate for reform. Petition for Strong & Stable Pathway of Support for Survivors 
This campaign must continue till achieved it goals no matter what happens to me... I have to get a better pathway of support for women!

Saturday, 7 April 2018

Discharge home with build up plan

Discharged home yesterday with all this build up stamina and well being plan. But overall isn't this situation crazy as if I had financial dignity from good DWP support and my state pension I would have been eating better to be able to fiend off this horrid chest infection bug.... I am so impressed with the care of the staff and the concern and respect for me, my situation and my campaign.  I have been able to show the staff the blog and petition for them to give me some support and to spread the word that there needs to be major reform of the DWP for women survivors..... I am tweeting the hospital too for more support as we must get Women's voices heard.......  When I was in hospital the DWP contracted in "how satisfied are you with the DWP survey" rang me to ask the questionnaire questions .....most are yes or no answers ....&  likely or unlikely answers... lol poor Tim the caller as I had to tell him all I am going through.. I know they are using an office in Millbank so on the "how satisfied are you ..." I told him to look out of his office window as there will be a team of WASPI protesters outside parliament showing we 1950s born women are extremely dissatisfied with the DWP as we want our state pensions!! He said he would look at my blog and the petition for women survivors too. But do note - That survey will NOT reflect all the crap we are all going through by the gov NOT understanding the front-line needs!! So it is upsetting that a private survey firm has been contracted in paid a fee for this while those on the front-line are suffering poverty!! This government is totally incompetent! 

When I got home yesterday was greeted with letters from the DWP one nagging me for the Work Capability Assessment form.... of which I opened exhausted from all this hassle and harassment form them... and the second letter was the persistant deductions for the London Borough of Hillingdon to take out said council tax debts from the property where I was brutally attacked.  Despite email appeals to the Tory Council leader Mr Puddifoot fails to waiver this or indeed write to me or speak to me... and I have informed Boris Johnson as the property is in his constituency... but no letter response from him neither. 
Shameful that women are hassled like this.  When I was in hospital one of our survivors I met at the White Ribbon Lunch came to see me.... she has had passed admissions with asthma from the poor housing conditions she is in and the hassle of failed support....

Here a nice report for you πŸ’žπŸ˜½πŸ˜½πŸΎHad a wonderful 10hrs sleep with my personal nurses around me.. both Pengu and Lulu gave me paw massages to settle hhhh and Lulu still on "duty" in her comfy spot while I am up having me weetabix.... and me vitamins...... gee but despite that lovely sleep ...the tiredness unbelievable with this mean virus bug......My devoted sister cats are like Earth Angels to me .. they know when I am unwell and keep near me... I missed them when I was in hospital...but they are making up for the time apart. Lol as I type this Pengu is tapping my arm all the time for me to scratch her neck..
Turning pain into Campaign!
Reform to help women heal and rebuild.... when will we get this right and fair for women? Sign the petition it is still on the go till I get some debate for reform. Petition for Strong & Stable Pathway of Support for Survivors 
This campaign must continue till achieved it goals no matter what happens to me... I have to get a better pathway of support for women!

Wednesday, 4 April 2018

Loving care from staff

some improvement with the IV antiboitics and vitamins... got a lovely consultant and all the staff caring for me with love respect for me being the retired sister and a lot of darn good clinical skills to make me feel in safe hands...  I keep feeling as if getting better then have a massive drop in energy and the darn coughing and wheezing starts again.... thank goodness for nebulisers....

Thought you would like this photo that my daughter took on Easter Monday... she came with grand daughter and they had brought a princess cake with tiara for us to share with staff.... then my daughter realised I am in bed no 10... lool thought this fitting given all the political battles I am in ... 

So I am Lady Marjorie PM at no 10 on the frontline of the NHS.... with my laptop and bedside campaigning to get a better pathway of support for women.  
Good news about the CT lung scan at no clot and no sign of the dreaded big C... it is just a mean set of bugs a combined bacterial and virus.... the virus keeps sapping my energy... The catering staff have got some good meals in and eating 3 good meals a day as all citizens should be able too... you see had this overwhelming infection with at my lowest ebb.  I have asked my MP to write to the DWP and I have tweeted them as I have the 24 page work capability form to submit... but I cannot meet the deadline and in honesty I am NOT fit for work... when it is time to discharge may need some home visits....

Turning pain into Campaign!


Reform to help women heal and rebuild.... when will we get this right and fair for women? Sign the petition it is still on the go till I get some debate for reform. Petition for Strong & Stable Pathway of Support for Survivors 
This campaign must continue till achieved it goals no matter what happens to me... I have to get a better pathway of support for women!



Monday, 2 April 2018

Emergency admission to hospital

I am updating from my hospital bed... I was rushed into hospital on Thursday with Dyspnoea ( difficulty breathing) expiratory wheeze and in near collapse with chest infection. GP and doctors and nurses been wonderful.... But the doctors are shocked at the benefits poverty I am in and not been eating well... they have put in their care plan IV vitamins so I have a bag of that infused every night along with all my other medications. I am sure this would not have happened if I could get some financial dignity to keep myself well..... and to do fun things like weekend spa break .. all the things you can do when you have some money to do so..... 
Remember I was sanctioned by Jobcentre when on JSA as my volunteer work was not accepted I must find a paid post.... and of course I cannot get my state pension as I am born in 1954 . There is another woman in the bed opposite that cannot get her pension and honest both of us look wrecks to work shifts anyway..... 
The doctors have been caring about my DV history too and are amazed at my petition and admire all my strength for justice and dignity for all women survivors....

The nurses been caring for me and my family ... and lovely to get best wishes from around the globe too with my facebook friends....

But can you see that poverty is actually expensive for the country as the spin off problems it causes costs. Surely it makes more sense to look after citizens to keep harmony and wellness.... and reduce all the social stress from poverty. But for us women survivors we have been pushed into poverty with our perpetrators financially crippling us so we really do need a review of the DWP policies..... 

Pray for me as I had a CT scan and will get the medical team report and review tomorrow... hope there is nothing more challenging to battle with...!!
Turning pain into Campaign!

Reform to help women heal and rebuild.... when will we get this right and fair for women? Sign the petition it is still on the go till I get some debate for reform. Petition for Strong & Stable Pathway of Support for Survivors 
This campaign must continue till achieved it goals no matter what happens to me... I have to get a better pathway of support for women!